Rare Disease Day
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‘We need research’: Advocates raise awareness on Rare Disease Day in CanadaFriday marks Rare Disease Day in Canada; however, the day is normally celebrated on the rarest day of the year – Feb. 29, when there is one.HealthFeb 28, 2025
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Small steps, big dreams: Calgary family raises money for walkerA Calgary family is raising money so that their two sons can have an opportunity to walk in the future after being diagnosed with a rare genetic condition.FeaturesMar 1, 2024
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Alberta family advocates for ultra-rare gene condition on Rare Disease DayBrooklyn Barra is likely one of only two people in Canada with a SPATA5 genetic mutation. Her parents want others living with rare conditions to know they're not alone.HealthFeb 29, 2024
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Coronavirus: Ontario patients, caregivers highlight impact of pandemic on rare disease community"These are people that fall through the cracks and fall through the cracks," said Durhane Wong-Rieger, President and CEO of Canadian Organization for Rare Disorders.CanadaFeb 26, 2021
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